Jenson and Aurora

Jensons surgery

Jenson and Aurora’s Story

This year we had the shock that Jenson’s has Chiari Malformation which is a condition in which a part of the brain (the cerebellum) at the back of the skull bulges through a normal opening in the skull where it joins the spinal canal. Jenson has a severe case and will need brain surgery in the next few months which will hopefully help eliminate him symptoms. - update around this Sept 24 Jenson has had his surgery and is recovering well ❤️

We do have some understanding around this condition as his younger sister Aurora had all ready been diagnosed with this in 2021.

As well Chiari, Aurora has a rare genetic condition relating to the mutation to the Gene PTEN. Mutations of this gene are a step in the development of many cancers.

Aurora is undergoing extensive testing and has had multiple longer stays in hospital. 

Both Jenson and Aurora have been extremely brave and we are so grateful for them to both be under the care of GOSH. 

Please do support us if you can 💙 

We're taking part in GOSH Charity’s family festival and fun run, RBC Race for the Kids, to raise funds to help build the new Children’s Cancer Centre at Great Ormond Street Hospital (GOSH).

Cancer is the biggest killer of children aged one to 14 in the UK. But a child doesn’t have to die from cancer for it to take their life. Living with cancer is different for every child. It can mean countless rounds of debilitating treatment. Seeing your siblings through the windows of an isolation room. Not knowing when you’ll sleep in your own bed again. It can mean missing out on parties and playdates and trips to the park. It can mean missing the moments that make up a childhood. 

But we won’t let it. 

We won’t let cancer steal childhoods. 

Great Ormond Street Hospital (GOSH) already cares for children with the hardest to treat cancers. Pioneering research is underway to find the most effective treatments and cures, which give hope to children and their families. 

But the rapidly changing pace of cancer medicine has outstripped GOSH’s existing cancer facilities., and the hospital needs a new home to help deliver breakthrough therapies. Somewhere that will treat the child, not just their disease. 

That home will be the new Children’s Cancer Centre at GOSH.

The funds raised from RBC Race for the Kids will help build a world-class facility with children at its heart. 

A place where children have access to play and education alongside pioneering treatments. Where families can stay together through some of the hardest moments. Where access to outdoor space is a priority, and a focus on nutrition helps fuel recovery. 

Please sponsor us to take on a 2k or 5k for GOSH Charity. Together we can build it. Together we can help beat childhood cancer.